NYC Round 2!

My second trip to New York for "research" was accompanied by my mom. I have never traveled with my mom and in fact, she has never (yes, in their entire marriage of 35+ years) spent as much time away from my dad as she would on this trip. They have done everything together (by choice!) including raising my siblings and then traveling together and even living abroad (possibly to escape my siblings and I, I'm still not sure about that)... So after the first day of getting delayed hours at the airport then trekking our bags through the subway after midnight, then getting lost because one of the connections had been shut down, I was not sure she would be with me for more abuse.. er, um... "Fun" come day 2. But, like the trooper she is, we slept our two hours and were up again to head to the Celiac Center for a "breath test". 

The hardest part about this test was the prep. For 24 hours before, there were no allowable fruits or veggies limiting the one meal I would have to plain white rice with plain salmon. YUM! As for the morning of the test, there would be nothing, not even the water and toothpaste to brush your teeth! 

The test itself simply involved breathing into a small handheld tube (similar to an asthma test) regularly over a period of three hours. That's it! Aside from avoiding boredom and trying to stop your brain from thinking about food, it is a CAKE walk (as you might have guessed, I had trouble not thinking about food!) 

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The point of the test is to measure bacteria in your stomach and see if perhaps it has gotten out of whack, causing symptoms that may be consistent with Celiac (bloating, gas, etc. - all the fun stuff!)

I'm still waiting on a call from my doctor to find out exactly what the results showed but the tech administering the test didn't seem to see anything of alarm. And although I should be happy to have "normal" results, as opposed to a gut full of bacteria,  I am not sure what it leaves as an explanation for the continuing symptoms. If you have Celiac and are still having discomfort regularly this may be something to ask your doctor about. It's not difficult, just don't think about food.... Or cake...

Nutrition 101

My second stop at the Celiac Center was with a nutritionist who started by asking what I was "in for" so to speak. Like a new inmate, Celiac didn't come with an orange jersey but one could argue it had its own set of shackles. 

I showed her my food journal and explained my progression from pescatarian to gluten free, to Whole 30, to low iodine. All cumulative, never stopping any restrictions, only adding. She was a wealth of information, guiding me not only on what I could eat but also what I SHOULD eat. And she offered creative suggestions to get more nutrients without undoing the benefits. For example, trying to maintain low iodine would continue (since it was the only time my face rash saw any relief) but adding one regular egg to two egg whites would boost my protein and still maintain a lower iodine diet overall. 

She encouraged me on the journey, sharing that over time (and decreased inflammation internally) the restrictions could decrease. She even made a few restaurant suggestions that all sounded pretty delicious.  

The best thing about my meetings was that no one was rushed. We sat around the table like old friends and I got more answers in two hours than I have in six months with well intentioned, but uneducated in the field, local doctors.  

Before we left, she copied a few pages from my food journal for review and let me know I could reach out with any problems or questions. It was like I was part of a team now, not only one who was supportive, but one who knew all the plays in the playbook. Next up, the dermatologist!

I'm Sorry I Let You Down

I can honestly say that the worst thing about Celiac is not just all the food you won't eat. Sure, you'll miss a fresh, toasted bagel from your local sandwich shop. And you will definitely miss the desserts that you'll watch everyone else eat at parties and at your favorite restaurant. That part sucks. But for me, the worst part about Celiac is letting everyone down around you.

It's not intentional and everyone "understands" but it happens just the same. It happens when you skip out on lunches, with the coworker that you've had standing  Monday lunch plans with for almost four years. Now he's wracking up loyalty stamps at the mall stands that pass out tiny pieces of meat on toothpicks.

And it happens because you and your brother used to bond over impromptu sushi dinners and when he forgets again and suggests it, you have to remind him you can't go out because you're still avoiding gluten... and rice... and seaweed because you might be allergic to those things too.

It happens when you find yourself snapping at your mom because she suggests asking the doctors one more time and you respond in frustration, "Stop telling me that, they all say the same thing!"

It happens when you call into work one more day because the pain is so bad, you have trouble getting out of bed. And it takes a full day before you return to "normal".

And worst of all, it happens when your boyfriend can't wait to see you for a date night, but instead of getting the old you, he gets the you that's reached her breaking point and breaks into tears all night over the pain and the loss she feels everyday.

I said before that I believe it's important to look at the positive and rise to the challenge. And I try to everyday. But I wouldn't be genuine if I didn't say this is hard. At times, almost impossible. And it has nothing to do with bread.

Juice'd ⭐️⭐️⭐️⭐️⭐️

After seeing so many posts, pictures and blogs about a new place in Orlando called Juice’d, I finally had the opportunity to visit this Sunday. The founders stress their desire on the website to offer healthy food and beverage alternatives to what exists elsewhere. You can find cold pressed juices, smoothies, salads and my preferred choice, smoothie bowls.

Walking in you see a clean and modern environment, complete with a green lush back wall, like nature itself can’t stay away! Although they advertise gluten free, along with “100% organic, GMO free and locally sourced”, I wasn’t exactly sure what my options might be. I started asking about the PB Acai bowl and found they were happy to omit the granola and substitute almond butter for peanut butter (since I was still avoiding peanuts in my auto-immune diet).

I took a seat in the corner, sunlight shining through the large window, and waited for the most beautiful acai bowl I’ve ever seen.

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Anytime I'm out and have to make substitutions to a dish, I know the flavor may be off a bit, but to my surprise, it was amazing! Not too sweet, and the consistency of frozen yogurt, my only disappointment was that I live twenty minutes away and can't visit every day!

I would like to say I’ll try the salads and the smoothies one day, but I’m not sure. I will say, five stars for the smoothie bowl. If you’re in the area, don’t miss it!

Potato Kale Soup

For some reason, I love potato soup. I didn't care what I ended up with when I started cooking this soup as long as I had nice chunks of potato waiting for me at the bottom of my bowl. Fortunately, it turned out to be good so I'm sharing it!

Ingredients: 

5 cups of water 

1 small can unsweetened coconut milk

2-3 small russet potatoes, cubed

1 large onion sliced thick

3 cups carrots sliced thin

2 cups kale

1-2 teaspoons salt

1/2 teaspoon pepper

1-2 teaspoons garlic powder

1-2 teaspoons onion powder

1-2 teaspoons paprika  

2 hard boiled eggs if desired

Put potatoes on high heat in water with 1 tsp salt and bring to a boil for ten minutes. 

Bring heat to low and add onion, carrots and spices. Most spices should be to your taste so start at the low end and add more as needed to finish. 

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Add coconut milk when mixture is no longer boiling. Stir for five minutes, cover and simmer low for 40 minutes. 

Add kale and cover to simmer low for twenty minutes. Add more spices as needed. 

I like to add some sliced hard boiled eggs when serving for protein and scallions to finish. Serve hot and enjoy!

 

 

A Whole 30 Journey...

After turning to every doctor, support group and nutritional counselor I could find (and that would listen), I decided something drastic had to be done. I was fighting an uphill battle of symptoms and getting no where fast. Clearly, just "gluten free" wasn't enough, unless the detox period was over three months (of course that was anyone's guess)! 

A common suggestion I had heard, across all the experts I talked to, was to embark on an auto-immune diet for one to two months. The theory as I understood it was that my body may be sensitive (you think!?) and reacting to a NUMBER of inflammatory foods, not just gluten.  By cutting everything out, you allow healing and after that period is done, you can introduce a food in one by one to get to the diet you'll need for the rest of your life. S**t was about to get real. 

Although I would need to be slightly stricter, the closest diet to use as a reference was one called the "Whole 30".  This was a no (added) sugar, no gluten, no dairy, no processed food, no beans, no legumes, no alcohol, no kidding diet. On top of that, I would be restricting anything processed in a factory, eliminating caffeine and remaining pescatarian (a vegetarian who eats fish). 

As a sign of solidarity my boyfriend and brother's girlfriend committed to the 30 days with me. We were the three amigos and together could not fail! Or... so we thought! 

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Pizza Delivery, at its creepiest....

This past Tuesday I decided to drive down to Fort Myers, FL for a meeting scheduled for the following morning. I knew it meant a night away from home, but it also meant I would not be driving down the highway at 4am Wednesday morning, inflicting emotional trauma on drivers around me as they watched me nod off! 

It was late in the evening when I landed at my hotel and I was anxious to eat and sleep. Unfortunately, my plans didn't go exactly as I thought they would. When I asked the hotel what they might have available for someone maintaining a gluten-free diet, all I got back was "nothing"........... Hmm....

Since "nothing" wasn't exactly what I had hoped for, I decided to do a Google search immediately. After making a few calls, and reviewing more than a few online menus, I settled on a small upscale pizza parlor that had not only a gluten-free menu, but also would deliver! 

Enter dilemma two. At this point it was 9 PM and my stomach was growling. But when I called and spoke to the first employee at the restaurant, they seemed to be a little overwhelmed with my request. Fortunately, what sounded like a manager came on the line next. He assured me they could do a gluten free personal size pizza with a salad and even a drink to go. The only problem was they were in the midst of making the batches of dough for the next morning, so in order to ensure an allergy safe pizza, they needed to clean up the space and it would take about an hour and a half before I was seeing any semblance of dinner. Since pizza.... Or, well... PIZZA was my only option I decided I'd wait. The manager said he'd send my order out with someone at the end of their shift so I thanked him and began the search to find something to fill my wait time.  

Just about the time my will to live was ending, my cell phone rang! It was the same employee I'd talked to earlier and he was delivering my meal personally! What service! I met him in the lobby and he was overly friendly, I figured because I had tipped him about 35% for his efforts to keep me fed. 

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It was about twenty minutes later that my cell phone rang again, now well into the late evening hours. I recognized the number from the pizza guy. "Odd, I'll just let it go to voicemail and see if maybe he charged me wrong or something"... When he didn't leave a voicemail, I figured it was nothing. But now at 11pm, my phone starts buzzing again with a message from the same number! "Just checking to see how your dinner was. It's me, pizza guy (not exact quote, he used his name : ). Hope your night is great." Now some of you may be thinking, "That's not creepy, it's sweet." But here's the actual truth and a tip for anyone delivering food. If you happen to deliver to a single gal in a hotel and (because it's required for her order) you score her cell number, don't use it to check in on her at 11pm at night!!! I locked my door and triple checked it at least five times, kicking myself for giving out my room number on the initial call. 

On the bright side, my meal was pretty fantastic... 

Firebirds ⭐️⭐️⭐️⭐️⭐️

It didn’t take long to fall in love with a new restaurant in the Mills area of Orlando. Firebirds stands out as you drive past it, boasting a modern brick design and large outdoor patio. With my good friend in town from San Diego, I decided to give it a try, hoping it would be up to the “foodie” standards of California.

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When you walk in, the high ceilings, impressive bar (with items organized by color along the back wall) and bright pops of orange throughout make you feel like you’ve stepped into a place designed with every detail in mind. My friend and I chose a high top table with bright pillows and a nearby built in fireplace. From start to finish, we were catered to by a friendly and knowledgeable staff (one of whom shared tips from his training), “Never say no to a customer”.

The separate menu full of gluten free options was amazing. I decided to start with a fruity mojito (it was happy hour after all), which definitely made it to the top ten list of best drinks I’ve ever had. And for dinner, I chose a strawberry shrimp salad and side of mashed potatoes. This would be a great time to share a picture with you, but it looked so fantastic I dove right in and was NOT disappointed. If I had to find any negative, I’d say the salad was a little heavy on the dressing, but the taste was so delicious it would be hard to fault having a little extra.

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So, if you like good food, a friendly staff, amazing drinks or just sitting down in a relaxing and beautiful atmosphere, Firebirds is the place to be. You’ll probably see me there, right next to the fireplace. If not, that’s ok… more for me!

I Work Out

Working out used to be a pretty big thing. I enjoyed it and like 100% of the human race, I needed it. I had a regular exercise routine I followed called the Bikini Body Guide, I'd run for fun and I'd hit the weights with my boyfriend. Then Celiac came into my life, like the four horses of the apocalypse.

Gluten free currently means two thing to me specifically. 1. Finding something to eat out may be so stressful you will choose to just skip a meal altogether. 2. When you do find a meal, your stomach is now so sensitive, you should probably just eat a few bites if you don't want to feel worse. So now, I'm averaging about 800 calories a day and working out equals passing out and occasionally throwing up. It, like eating out, has become infinitely less fun.

But, it is February 20th and this amazing group of women I connected with last summer are having their monthly meet up and I'm determined to go. I intelligently deduce I will need to eat before this workout and select a gluten free bar I've tried before. Should be safe!

It's about 8:30am when it kicks off and I start the first circuit determined to make it through. Burpees to start? I am already questioning this decision. It's not until the second 6 minute circuit that my body has run out of fuel. My muscles feel good but my head is getting light. I try to move slowly, cautiously. I'd prefer not to be on the Instagram wrap up video laying on my mat like a dead opossum. We move to round three. I make a jump and there it is. I've just thrown up - but no one knows. I'm gonna need a sip of water to swallow. Ugh. I am officially the classiest lady here.

We wrap up and miraculously I'm still standing. And even more miraculous, our sponsor for this meetup is Ellie Quark, an amazing GLUTEN FREE yogurt. I may have cried a little as I scarf one down.

The point of my story is this, don't fight your body. If you have just been diagnosed or are for some other reason trying to eat gluten free (to which I would say, are you insane?), things are changing. You won't be able to fight it and from what I hear, it WILL eventually get better. So when you need to take it easy, take it easy. This too shall pass. Now excuse me while I go eat a gf snack bar.

 

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