I'm Backkkkk!

Last year this blog focused on going through the initial diagnosis (and subsequent painful withdrawals of gluten) and this year I've been mostly quiet. My friends and family may tell you to count your blessings for that but without further ado - I'm back!!! And it's time to switch gears - just a little.

I'm officially past - although some days it doesn't feel it - the initial diagnosis and trying to find out how to live with Celiac. Even still, after adding numerous concoctions and potions to ease the pains, I keep learning. More and more and more. For example, did you know that if you're adding tumeric to your smoothie in hopes of some anti-inflammatory assistance, you've got to add black pepper? I literally found that one out today!! You can bet it will be an addition in tomorrow morning's smoothie.

But there's another aspect to living with Celiac. And for me, it's how to remain positive. Going through year one was so intense, there wasn't much thought given to what happens next. Next being for example, the rest of my life! But here I am and I'm trying to figure it all out. I started searching for some happy Celiac swag and instead came across a few shirts. Some so plain that this wannabe fashionista shed a tear and some so negative (perhaps you've seen this one - "I can't eat gluten - that's why I'm a b*itch") that I completely gave up. Until I realized, perhaps there were more Celiac and gluten free peeps that wanted what I wanted. And now that I wasn't spending ALLLLL my energy on being sick, maybe I could do something about it.

So yeah. I did. Celiac Cutie was born and I am suddenly a business owner. Wait - what?! This blog is officially and unapologetically about my life and whether I like it or not - my life = Celiac. But now, shifting gears means you're gonna take a ride into the world of being a Celiac who's also trying to start a business and travel the country selling soft funny tees and gluten free "swag". I'm hoping it will be fun and more importantly, that through this process a community will be born. One that's less "F Gluten" and more - "let's just have a little fun". I hope you're in - cause I'm not really sure how you unsubscribe anyways...

Life, New Years and Such

Have you ever stopped to reflect on what your ten year old self would think of you today? This year of 2016 and all it's challenges (I hate you Celiac) has finally come to an end. I had a lot of time over the holidays to stop and breathe. To refocus and to rest. I began to realize that life gets in the way of a lot of important things. It's not so much to say that life stops being good, it's just that the good sometimes becomes overwhelming and becomes bad. A job is important, relationships are important, heck - bills are important! But when they become EVERYTHING, it is easy to lose yourself in the mix, especially when everyone around you is focused on real life problems too. 

I am not who I thought I would be when I was ten. Inside, I'm still there, I can feel it. But along the way I make compromises. Tiny little changes, nothing significant. I stay later at work to ensure I keep my job. I make concessions in relationships to keep the peace. I live places convenient to responsibilities rather than where I really want to. I lose sleep to keep up with life's demands even when my body is desperate to rest. It's like turning the steering wheel a tiny fraction. As you're driving it doesn't matter, you're still going in the general direction. Until, it starts to add up like a heavy snow fall that happened one tiny snowflake at a time and suddenly you are off the road and headed for a ditch (I'm in a very dramatic mood today, can you tell!?).  

So this week, month or year, whenever you can squeeze yourself out a break from real "life", I encourage you to stop and resurrect your ten your old (they're happy to come back, really). How do you do this? As such...  

1. Take some time for you - just you. Visit a coffee shop, take a walk, kick everyone out of the house and secure the doors with something heavy! 

2. Reflect on what is most important to you. And take inventory on how much time those priorities are getting. Do you sacrifice your health for the sake of others? Do you spend as much time as you want with your loved ones? Are you enjoying any good ole plain fun? 

3. Think like a kid. What would you do if you could (screw time, money and judgment)? What would you say to the people in your life if you knew they'd take it exceedingly well (are you holding back what you feel to "keep the peace" cause that sh*t will eat you alive)! 

4. Add one hour to your week to do what YOU want to do. It may be sleeping, it may be visiting a loved one, it may be going to a playground and running around like an idiot. Don't stop and apologize for what you want to do - don't come up with reasons it won't work - don't ask permission, just go! 

5. Repeat often. This isn't about being selfish, it's about being you! The best you possible! When you connect with yourself again, it radiates out from you and better supports all the other responsibilities of real life! Encourage others to do the same.... We could all use a little more childlike fun so make your ten your old self proud. And Happy New Year. 

NYC Round 2!

My second trip to New York for "research" was accompanied by my mom. I have never traveled with my mom and in fact, she has never (yes, in their entire marriage of 35+ years) spent as much time away from my dad as she would on this trip. They have done everything together (by choice!) including raising my siblings and then traveling together and even living abroad (possibly to escape my siblings and I, I'm still not sure about that)... So after the first day of getting delayed hours at the airport then trekking our bags through the subway after midnight, then getting lost because one of the connections had been shut down, I was not sure she would be with me for more abuse.. er, um... "Fun" come day 2. But, like the trooper she is, we slept our two hours and were up again to head to the Celiac Center for a "breath test". 

The hardest part about this test was the prep. For 24 hours before, there were no allowable fruits or veggies limiting the one meal I would have to plain white rice with plain salmon. YUM! As for the morning of the test, there would be nothing, not even the water and toothpaste to brush your teeth! 

The test itself simply involved breathing into a small handheld tube (similar to an asthma test) regularly over a period of three hours. That's it! Aside from avoiding boredom and trying to stop your brain from thinking about food, it is a CAKE walk (as you might have guessed, I had trouble not thinking about food!) 

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The point of the test is to measure bacteria in your stomach and see if perhaps it has gotten out of whack, causing symptoms that may be consistent with Celiac (bloating, gas, etc. - all the fun stuff!)

I'm still waiting on a call from my doctor to find out exactly what the results showed but the tech administering the test didn't seem to see anything of alarm. And although I should be happy to have "normal" results, as opposed to a gut full of bacteria,  I am not sure what it leaves as an explanation for the continuing symptoms. If you have Celiac and are still having discomfort regularly this may be something to ask your doctor about. It's not difficult, just don't think about food.... Or cake...

Food, it Humbles us All

I write a lot about Celiac because it's so cool and chic. I mean, who wouldn't want this amazing disease? But today I thought we'd venture out into another eating problem that can be debilitating and embarrassing. You or someone you love has probably suffered from it at one time, and the worst part is, you may have not even known! 

That's right, I'm talking about the "food stuck in your teeth" ailment. This affliction is not only debilatating for the individual that suffers but also for everyone around them! Let me paint a scenario for you. There you are with a friend or even worse, a date! The ambience is perfect, the lighting low, the waitstaff attentive to your every need. You look down at your plate that has just arrived, perfectly presented in the flickering candlelight. You grab your silverware and prepare to take the first bite, lifting it to your lips and looking into your companion's eyes but, GAH!!!!! You can't look in your companion's eyes because you are immediately drawn to their teeth. What used to be pearly whites are now pearly whites being massively invaded by flowery green! Or worse, black!

Inside, you panic. The stress is now destroying your once happy meal. You try again with another bite, looking down and hoping that when you raise your eyes once more the situation will have resolved itself. You take your time, pretending you have a need to get the "perfect" bite onto your fork. You slowly, carefully raise your eyes again and, OH GOD!!!! The situation has managed to get worse!

Not to fear, I am here to help you in these times of great distress and have created a three point scale complete with steps of action.  

Scenario 1: Your companion has a small discoloration lodged between their teeth. Perhaps pepper or a similar sized spice. 

Action: DO NOTHING. I assure you, a tiny object will most likely be noticed by your companion and rectified on their next trip to the bathroom. If you attempt to fix this situation at the given table, it will end in multiple gestures of "here, no not there" followed by your desire to reach across the table and use your fingers in your companion's mouth. This is not acceptable. Therefore, I repeat, do nothing.  

Scenario 2: Your companion has a large discoloration lodged between their teeth or perhaps resting comfortably on top of their teeth.  

Action: Kindly and ever so softly as to not draw attention to the entire world whisper, "Oh, looks like you have a little something something" as you point appropriately, to the offending area using your own mouth as a road map. If you do not take some action, when your companion is alerted to the situation themselves either through the person across the room that can make it out, or on their next trip to the bathroom, they will despise you for letting them look like a moron. Understandable.  

Scenario 3: Your companion chose poorly, ordered black bean soup with large chunks of cilantro and now has a mouth that more closely resembles brown m and m's than white chiclets. 

Action: Excuse yourself and wait in bathroom approximately thirty minutes until your companion  finishes eating, gets bored and hopefully (dear God, hopefully) checks their teeth or utilizes a toothpick. 

So, perhaps my suggestions are not perfected but it's nice to know that it's not just us Celiac's making dining out an adventure. Happy eating to us all!